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With adulthood comes further challenges, particularly around increasing independence and the lack of understanding about the very special needs of those with PWS on the part of some who work with them. Usually, instead of being under the care of a particular health professional such as a paediatrician as they were when children, adults will be seen by different specialisms for their health care. The following links will help all concerned to understand more about PWS and its management for adults.


You are not alone

The following links are sections from the PWS Journey. Families can obtain a hard copy of the whole PWS Journey, which is updated as their child reaches the next age range, by becoming a member of PERSATUAN SINDROM PRADER-WILLI MALAYSIA

Dietary Management


Behaviour Management


 
 
 
Health Care


Speech and Language


 
 
 
Education, Work and Training


Residential Care and Supported Living


 
 
 
Social Life and Relationships


Information For College School Staff


 
 
 
Information for GPs


Information for Hospital and A&E Staff



INTRODUCTION

PERSATUAN SINDROM PRADER-WILLI MALAYSIA creates awareness and provides accurate information among public citizen about Prader Willi Syndrome. We establish network of association with organization, agencies and professionals involves in providing treatments, trainings and education to the patients. Feel free to browse through our website for more details.
CALL US NOW

PERSATUAN SINDROM PRADER-WILLI MALAYSIA

No. 132, Jalan Enggang, Taman Keramat, 54200 Kuala Lumpur, Selangor, Malaysia.
 
+6012-339 5232
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